Marfan syndrome has made it hard for me to do a lot of things. I'm always the center of attention. I can't play a lot of sports or a do a lot of physical activity. I have learned to live with it though, and if you have any questions, you can ask. This is me. I have marfan syndrome. I have come across many challenges in my life. I've had a lot of surgeries including my eyes, heart, back and more. Ask questions you have or if you want, share a story.
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